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Through its innovative Relationship Development Intervention (RDI) Program, RDIconnect gained a worldwide reputation for designing family-based programs. Currently, RDIconnect provides programs for an entire range of developmental difficulties.
Getting Away From "Getting" by Laurel Joss

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This blog focuses on parents, professionals, families and relationships. Humorous and informative it provides an additional outlook on the day-to-day lessons and wisdom we learn from each other as well as reflective insight into the RDIconnect Programs. Forging New Pathways publishes content submitted by RDI Consultants and the families who work with them. Moderated by RDI Consultant, Lisa Palasti.

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This week's guest author, Laurel Joss, will share some basic RDI principles about how to take those first steps to develop a truly meaningful and reciprocal relationship with your son or daughter. 

In a recent episode of the hit show Parenthood on NBC, a father expressed his frustration at his inability to engage in a conversation with his son, Max, who has been diagnosed with Asperger's syndrome.  The show has portrayed the family's struggle with living with autism and Max's journey through his behavioral therapy program.  He spends much of his time engaged in activities with his therapist that he completes in order to earn stickers, but he shows little interest in the other members of his family. 

This is perhaps the single most frustrating aspect of raising a child on the autism spectrum.  The simple give and take of a connected relationship can seem like an impossible dream.  We spend countless hours and dollars on therapies designed to increase our child's vocabulary and skills, yet a true reciprocal connection continues to elude us. 

The good news is that it is possible to guide your child in a different way, a way that will lead to a back and forth, reciprocal relationship that other parents take for granted.  You will not get this relationship by engaging your child in static drills or by rewarding them with stickers or candy every time they give you a "correct" answer.  The way to get a true connection with your child is simple, yet very challenging, especially for parents who are used to hours of behavioral drills. The secret is simply this:  back off and stop trying to "get" something from your child. 

Take a moment to think about the other relationships in your life.  These relationships did not occur because you gave the other person a sticker to have a conversation with you.  These relationships developed in their own way, over time, with multiple encounters and reciprocal interactions.  In fact, if you think about any time when you tried to force a relationship, it is likely that it did not turn out well.  You cannot "make" someone take interest in you - this is true for neurotypical people  and it is also true for people who are on the spectrum.   Your child might engage you in a stilted, forced "conversation" in order to earn some type of external reward, but true connection can only be forged over time and without pressure. 

One of the first things an RDI® Consultant will recommend is that parents spend regular, unstructured time with their child  without putting any demands on either party.  This can be difficult at first.  It is not likely that you will get the conversation of your dreams the first time you try this.  It can be anxiety-provoking for a parent, especially one who has been conditioned to spend every waking moment being therapeutic, "doing" something about their child's condition.  This is where it is important to let go, to trust the process and to have faith that over time, the parent-child connection with evolve. 

You are probably thinking that this could not possibly work.  If I sit with my child, he will be stimming on his video games; he will not even notice that I am in the room.  How can this possibly help us to form a connection?  These are valid questions. 

First of all, when we ask you not to make any demands on your child, we do not mean that there will be no limits.  The limits you set with your child will depend on his or her needs, but here is a short list of the most common limits we recommend:

  • No electronics
  • No items that feed into your child's obsessive interests
  • Child may not control the interaction by insisting that you talk about an obsessive interest or by expecting you to do certain things in certain ways
  • Child may not leave the room until the time is up. You may hold the child's hand if necessary.

You may need to add other limits, depending on the needs of your child.

Basically, at first  the goal is to spend some time every day with your child, without demands.  Many children on the autism spectrum have been through so many hours of therapy where interacting with others means little more than constant demands: answer this question, repeat this word, complete this task.  They've had very little experience just "hanging out", enjoying another person's company for the sheer pleasure of it.  Granted, your child probably will not make this discovery the first time you have your "hanging out" time, but once they  learn that you are not using this time to "get" anything from them, they will relax and start to enjoy the experience of spending time with you. 

This requires patience  and a little bit of faith, but the results are truly worth it.  You are giving your child time to build a relationship with you, without pressure.  It will take time, but all good relationships grow over time.  It will also be necessary to look at your own mindset and to try to stay relaxed during your time together because your child will sense your anxiety.  Let go of any expectations during this time - don't try to "get" anything from your child.  Allow the relationship to develop in its own way, in its own time.  This is the best gift you can give to your child and to yourself.   

Laurel Joss is an RDI Program Certified Consultant in the Chicago Illinois area.  She has a master's degree in early childhood education and she has been using RDI with her own son who is on the autism spectrum for eight years.  Check out her blog at http://www.remediatingautism.blogspot.com/.  E-mail ljoss@newhopeforautism.com 


Posted 8 Mar 2011 3:39 PM by Lisa Palasti
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Comments

Deirdre wrote re: Getting Away From "Getting" by Laurel Joss
on 9 Mar 2011 7:28 PM

Laurel,

Starting with the relationship is central to all our relationships!

Hanging with one another may mean taking a walk, putting the dishes away, rocking together.  As you say in your blog, doing what ever you need to do depending on your child's needs.  These are the moments that build families.

Thanks for saying it so well.

D

Silvia wrote re: Getting Away From "Getting" by Laurel Joss
on 16 Mar 2011 6:57 AM

Laurel:

I love your post. It is written in a very friendly, encouraging way for parents.

I have a parent that is having difficulties moving away from the "getting" part and feels that doing everyday activities is not "working" with the child. I am going to share with her your principles.

Thank you!

David Sponder wrote re: Getting Away From "Getting" by Laurel Joss
on 17 Mar 2011 11:15 PM

Profound and helpful...but..

Parents may ask, "If I'm not doing all of those things, what am I doing?"

I might suggest what I call, "Declarative Actions."  Laurel is absolutely right, and what I'm about to say might lead folks to "getting" again if they are not careful.  

Declarative actions are like declarative language.  The content of declarative language is one's subjective point of view: comments, observations, opinions, as well as the emotional gestures and prosodic elements that accompany and further define them.

When you ask an individual with autism to do something, you rely on an internal representation of the idea - one in which the individual can look at and consider whether or not he or she wants to do it.  Very young children and individuals that have difficulty creating mental "visuals" from language input often reflexively avoid the requests.  In fact, they may avoid the request, but if they see it happening, may want to join.  

So for instance, one can say, "Would you like to play blocks with me?"and get a reflexive "No" or rejection from their child.  

Think "seduction."  Sit down and play the blocks and don't invite.  Don't ask, don't require.  Have conspicuous fun, but don't make it seem as if you are doing it only to "get" the child to play.  This is pressure and the child can sense it.  

The best choices for declarative actions are those that you think might appeal to your child.  Have fun with it.  Don't look in his or her direction.  When and if he or she joins, don't praise or thank.  Let the child lead.  NO PRESSURE.  Forget "skills."  This is not the time.  Laurel is absolutely right, "They've had very little experience just "hanging out", enjoying another person's company for the sheer pleasure of it."  This is because almost every interaction up to that point has been designed to change him or her.  

Another way is to set out things that your child enjoys and try to join in without pressuring.  This can be tricky as your child might be very used to doing his or her favorite things alone and has no way of including others.  They may be used to absolute control and very static actions.  There's no room for others.  One way to "become a part" is to watch the ritual (say, lining up trains).  Watch the order in which your child sets them up - it'll probably be the same ever time.  Now that you know the routine, be the one that hands then next 'needed' object.  

"But that is my child's obsessive interest.  I'm not supposed to feed into this."  That's one way of looking at it.  But you are creating something new by turning it into a co-regulated activity, and your child will truly appreciate your not barging in and taking over.  This can set you off to a bad foot and reinforce your child's suspicions that people don't really want to get to know him or her - they're only interested in imposing themselves and changing everything.  Those trains may be your child's Mona Lisa.  It may be her 'glass of wine' after a stressful day.  Try to appreciate it.  But as Laurel advises, don't allow your child to force you to do it a certain way.  If that is what happens - than the activity is a bad choice and should be off limits.  

Ian Quinton wrote re: Getting Away From "Getting" by Laurel Joss
on 30 May 2011 8:06 PM

I just wanted to share particularly with Dads some down time ideas - its nothing new. 3 Easters ago my son Jack (aged 7 at the time) and I went on a weeks 'road trip'. This was not only time for he and I to be together but also give some quiet days for my wife and daughter at home to just chill. That first road trip has now become an annual event for Jack and I where we travel to catch up with friends, visit parks, catch the odd train day trip etc. This annual week away has been free of demands while going with the flow but still placing guided participation into many new and unexpected opportunities.  The benefits for both Jack and I have been enormous and has greatly developed our emotional connection. To all dads - try it.